ALS, also known as Lou Gehrig's disease, is a progressive neurodegenerative disorder that affects nerve cells in the brain and spinal cord. It results in muscle weakness, difficulty speaking, swallowing, and eventually breathing. There is currently no cure for ALS, and the cause of most cases is unknown. Despite this, research continues to advance and improve treatments for those living with the disease. Physical therapy, speech therapy, and assistive technology can help manage the symptoms of ALS, but it ultimately leads to complete paralysis and death. Nevertheless, patients and families affected by ALS have shown remarkable strength and resilience, leading advocacy efforts and raising awareness for the need for a cure. Jessica: https://instagram.com/jessicalbdr?igshid=YmMyMTA2M2Y= Jessica’s Father’s Book: https://www.amazon.com/dp/B00B9X2MJY?ref_=cm_sw_r_apin_dp_J2NJV980JKFFS5FA56AJ For more information on ALS: https://instagram.com/als?igshid=YmMyMTA2M2Y= FREE-1 year supply of Vitamin D and 5 free travel packs with code INSANE: www.athleticgreens.com/insane Audience Survey: http://survey.podtrac.com/start-survey.aspx?pubid=3RJP1Q85a-_d&ver=standard If you have a unique story you'd like to share on the podcast, email wereallinsanepodcast@gmail.com. 00:00 AG1 00:07 Introduction 00:17 Cuba 04:50 Fleeing Cuba 12:15 Arriving in America 13:45 Family Reunited in USA 14:45 Symptoms Appear 16:03 What is ALS? 18:20 Progression of Disease 20:30 Financial Strain 23:00 Acts of Kindness 24:33 AG1 26:07 Health Scare 28:43 Lung Failure & Ventilator 30:30 Perseverance 32:00 Life Expectancy 32:30 Still Helping Others 34:20 Anger, Frustration, and Depression 35:26 ALS Ice Bucket Challenge 38:20 Emotional Breakdowns 40:36 Desensitized to Hospitals 41:15 Hardships of Caretakers 46:10 Father Chooses to Pass 48:08 Medical Aid in Dying 49:23 Saying Goodbye 52:30 Grief & Moving Forward 59:28 Survey