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Living with a rare genetic condition requires an acceptance that there is no treatment and one must simply live with it.
“And there's no treatment for it or anything like that? >> Nope. You just live with it.”
Soft White Underbelly · Mar 2026 · 1 episode · 575K views on this topicThe aggregation of many individual rare diseases represents a significant category of conditions that justifies dedicated medical and financial investment.
“each rare disease is rare but rare disease is not rare yeah right another way to say”
StarTalk · Apr 2024 · 1 episode · 131K views on this topicExtracted by a model; may misattribute who said what.
Complete months · first on record Jan 2024